1. American Academy of Pediatrics, American Academy of Family Physicians, American College of Physicians, et al. Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics 2011;128:182-200.
4. Scal P, Ireland M. Addressing transition to adult health care for adolescents with special health care needs. Pediatrics 2005;115:1607-1612.
5. Romelczyk S, Homan S, Telfair J, et al. Healthcare coordination and transition for individuals with genetic conditions. Matern Child Health J 2015;19:2215-2222.
6. DeBaun MR, Telfair J. Transition and sickle cell disease. Pediatrics 2012;130:926-935.
7. Treadwell M, Telfair J, Gibson RW, et al. Transition from pediatric to adult care in sickle cell disease: establishing evidence-based practice and directions for research. Am J Hematol 2011;86:116-120.
8. Bobo L, Miller ST, Smith WR, et al. Health perceptions and medical care opinions of inner-city adults with sickle cell disease or asthma compared with those of their siblings. South Med J 1989;82:9-12.
9. Aisiku IP, Penberthy LT, Smith WR, et al. Patient satisfaction in specialized versus nonspecialized adult sickle cell care centers: the PiSCES study. J Natl Med Assoc 2007;99:886-890.
10. Evensen CT, Treadwell MJ, Keller S, et al. Quality of care in sickle cell disease: cross-sectional study and development of a measure for adults reporting on ambulatory and emergency department care. Medicine (Baltimore) 2016;95:e4528.
11. Smith WR, McClish DK, Lottenberg R, et al. Comparison of adult and adolescent quality of ambulatory and emergency care in sickle cell disease: ASCQ-Me and the SHIP-HU study. Blood 2017;130:2258.
12. Wang CJ, Kavanagh PL, Little AA, et al. Quality-of-care indicators for children with sickle cell disease. Pediatrics 2011;128:484-493.
13. Kanter J, Dampier C, Agodoa I, et al. Quality of care in United States children with sickle cell anemia. Blood 2017;130:2098.
14. Bundy DG, Richardson TE, Hall M, et al. Association of guideline-adherent antibiotic treatment with readmission of children with sickle cell disease hospitalized with acute chest syndrome. JAMA Pediatr 2017;171:1090-1099.
15. Yawn BP, Buchanan GR, Afenyi-Annan AN, et al. Management of sickle cell disease: summary of the 2014 evidence-based report by expert panel members. JAMA 2014;312:1033-1048.
16. DeBaun MR. The challenge of creating an evidence-based guideline for sickle cell disease. JAMA 2014;312:1004-1005.
17. McCavit TL, Zhang S, Ahn C, et al. Quality of care in hospitalizations for sickle cell disease in the U.S.: do low patient volumes mean higher mortality? Blood 2008;112:166.
18. Oyeku SO, Faro EZ. Rigorous and practical quality indicators in sickle cell disease care. Hematology Am Soc Hematol Educ Program 2017;2017:418-422.
19. Sobota AE, Shah N, Mack JW. Development of quality indicators for transition from pediatric to adult care in sickle cell disease: a modified Delphi survey of adult providers. Pediatr Blood Cancer 2017;64.
20. Treadwell M, Johnson S, Sisler I, et al. Development of a sickle cell disease readiness for transition assessment. Int J Adolesc Med Health 2016;28:193-201.
21. Treadwell M, Johnson S, Sisler I, et al. Self-efficacy and readiness for transition from pediatric to adult care in sickle cell disease. Int J Adolesc Med Health 2016;28:381-388.
22. Telfair J, Ehiri JE, Loosier PS, et al. Transition to adult care for adolescents with sickle cell disease: results of a national survey. Int J Adolesc Med Health 2004;16:47-64.
23. Smith WR, Bovbjerg VE, Penberthy LT, et al. Understanding pain and improving management of sickle cell disease: the PiSCES study. J Natl Med Assoc 2005;97:183-193.
24. McClish DK, Smith WR, Levenson JL, et al. Comorbidity, pain, utilization, and psychosocial outcomes in older versus younger sickle cell adults: the PiSCES project. Biomed Res Int 2017;2017:407-547.
25. Smith WR, McClish DK, Dahman BA, et al. Daily home opioid use in adults with sickle cell disease: the PiSCES project. J Opioid Manag 2015;11:243-253.
26. Edwards R, Telfair J, Cecil H, et al. Reliability and validity of a self-efficacy instrument specific to sickle cell disease. Behav Res Ther 2000;38:951-963.
27. Edwards R, Telfair J, Cecil H, et al. Self-efficacy as a predictor of adult adjustment to sickle cell disease: one-year outcomes. Psychosom Med 2001;63:850-858.
28. Clay OJ, Telfair J. Evaluation of a disease-specific self-efficacy instrument in adolescents with sickle cell disease and its relationship to adjustment. Child Neuropsychol 2007;13:188-203.
29. Smith WR, Godder K, Sisler I, et al. Readiness for transition from pediatric sickle cell care: exploratory analyses of domains of readiness and total scores. Blood 2010;116:1066.
30. Weibell CJ. Principles of learning: 7 principles to guide personalized, student-centered learning in the technology-enhanced, blended learning environment.
31. Rumbaugh DM, King JE, Beran MJ, et al. A salience theory of learning and behavior: with perspectives on neurobiology and cognition. Int J Primatol 2007;28:973-996.