2. Max W, Webber P, Fox P. Alzheimer’s disease. The unpaid burden of caring. J Aging Health 1995;7:179–199.
3. McConaghy R, Caltabiano ML. Caring for a person with dementia: exploring relationships between perceived burden, depression, coping and well-being. Nurs Health Sci 2005;7:81–91.
4. Fortinsky RH. Health care triads and dementia care: integrative framework and future directions. Aging Ment Health 2001;5(suppl 1):S35–S48.
5. Haley WE, Levine EG, Brown SL, et al. Psychological, social, and health consequences of caring for a relative with senile dementia. J Am Geriatr Soc 1987;35:405–411.
6. Shaw WS, Patterson TL, Semple SJ, et al. Emotional expressiveness, hostility and blood pressure in a longitudinal cohort of Alzheimer caregivers. J Psychosom Res 2003;54:293–302.
7. Ory MG, Hoffman RR III, Yee JL, et al. Prevalence and impact of caregiving: a detailed comparison between dementia and nondementia caregivers. Gerontologist 1999;39:177–185.
8. Moore MJ, Zhu CW, Clipp EC. Informal costs of dementia care: estimates from the National Longitudinal Caregiver Study. J Gerontol B Psychol Sci Soc Sci 2001;56:S219–S228.
9. Cuijpers P. Depressive disorders in caregivers of dementia patients: a systematic review. Aging Ment Health 2005;9:325–330.
10. Akkerman RL, Ostwald SK. Reducing anxiety in Alzheimer’s disease family caregivers: the effectiveness of a nine-week cognitive-behavioral intervention. Am J Alzheimers Dis Other Demen 2004;19:117–123.
11. Clyburn LD, Stones MJ, Hadjistavropoulos T, et al. Predicting caregiver burden and depression in Alzheimer’s disease. J Gerontol B Psychol Sci Soc Sci 2000;55:S2–S13.
12. Pinquart M, Sörensen S. Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: a meta-analysis. Gerontologist 2005;45:90–106.
13. Robinson-Whelen S, Tada Y, MacCallum RC, et al. Long-term caregiving: what happens when it ends? J Abnorm Psychol 2001;110:573–584.
14. Zarit SH, Orr NK, Zarit JM. The Hidden Victims of Alzheimer’s Disease: Families Under Stress. New York, New York University Press, 1985.
15. Donaldson C, Tarrier N, Burns A. The impact of the symptoms of dementia on caregivers. Br J Psychiatry 1997;170:62–68.
16. Drinka TJ, Smith JC, Drinka PJ. Correlates of depression and burden for informal caregivers of patients in a geriatrics referral clinic. J Am Geriatr Soc 1987;35:522–525.
17. Lawton MP, Moss M, Kleban MH, et al. A two-factor model of caregiving appraisal and psychological well-being. J Gerontol 1991;46:P181–P189.
18. Sink KM, Covinsky KE, Barnes DE, et al. Caregiver characteristics are associated with neuropsychiatric symptoms of dementia. J Am Geriatr Soc 2006;54:796–803.
19. Yaffe K, Fox P, Newcomer R, et al. Patient and caregiver characteristics and nursing home placement in patients with dementia. JAMA 2002;287:2090–2097.
20. Cohen CA, Gold DP, Shulman KI, et al. Factors determining the decision to institutionalize dementing individuals: a prospective study. Gerontologist 1993;33:714–720.
21. Murman DL, Chen Q, Powell MC, et al. The incremental direct costs associated with behavioral symptoms in AD. Neurology 2002;59:1721–1729.
22. Whooley MA, Avins AL, Miranda J, et al. Case-finding instruments for depression. Two questions are as good as many. J Gen Intern Med 1997;12:439–445.
23. Mahoney J, Drinka TJK, Abler R, et al. Screening for depression: single question versus GDS. J Am Geriatr Soc 1994;42:1006–1008.
25. Dyer CB, Pavlik VN, Murphy KP, et al. The high prevalence of depression and dementia in elder abuse or neglect. J Am Geriatr Soc 2000;48:205–208.
26. Chodosh J, Mittman BS, Connor KI, et al. Caring for patients with dementia: how good is the quality of care? Results from three health systems. J Am Geriatr Soc 2007;55:1260–1278.
27. Annerstedt L, Elmståhl S, Ingvad B, et al. Family caregiving in dementia—an analysis of the caregiver’s burden and the “breaking point” when home care becomes inadequate. Scand J Public Health 2000;28:23–31.
28. Volicer L. Management of severe Alzheimer’s disease and end-of-life issues. Clin Geriatric Med 2001;17:377–391.
29. Saad K, Hartman J, Ballard C, et al. Coping by the carers of dementia sufferers. Age Aging 1995;24:495–498.
30. Mittleman MS, Haley WE, Clay OJ, et al. Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease. Neurology 2006;67:1592–1599.
31. Newcomer R, Miller R, Clay T, et al. Effects of the Medicare Alzheimer’s disease demonstration on Medicare expenditures. Health Care Financ Rev 1999 Summer; 20:45–65.
32. Shelton P, Schraeder C, Dworak D, et al. Caregivers’ utilization of health services: results from the Medicare Alzheimer’s Disease Demonstration, Illinois site. J Am Geriatr Soc 2001;49:1600–1605.
33. Cooke DD, McNally L, Mulligan KT, et al. Psychosocial interventions for caregivers of people with dementia: a systematic review. Aging Ment Health 2001;5:120–135.
34. Sörensen S, Pinquart M, Duberstein P. How effective are interventions with caregivers? An updated meta-analysis. Gerontologist 2002;42:356–372.
35. Brodaty H, Green A, Koschera A. Meta-analysis of psychosocial interventions for caregivers of people with dementia. J Am Geriatr Soc 2003;51:657–664.
36. Schulz R, O’Brien A, Czaja S, et al. Dementia caregiver intervention research: in search of clinical significance. Gerontologist 2002;42:589–602.
37. Chappell NL, Reid RC. Burden and well-being among caregivers: examining the distinction. Gerontologist 2002;42:772–780.
38. Fortinski RH, Hathaway TJ. Information and service needs among active and former family caregivers of persons with Alzheimer’s disease. Gerontologist 1990;30:604–609.
39. Hinton L, Franz CE, Reddy G, et al. Practice constraints, behavioral problems, and dementia care: primary care physicians’ perspectives. J Gen Intern Med 2007;22:1487–1492.
40. Fillit H, Geldmacher DS, Welter RT, et al. Optimizing coding and reimbursement to improve management of Alzheimer’s disease and related dementias. J Am Geriatr Soc 2002;50:1871–1878.